On Giving Tuesday 2022 Help Cure Collagen 6 Muscular Dystrophy

Our son Wesley is 3 years old. He is growing taller every year, and learning new things every day. Wesley has a rare form of congenital muscular dystrophy called Collagen 6 related muscular dystrophy. Wesley's body makes collagen that is "malformed" and as a result his muscles cannot develop, heal or grow normally. Wesley is five years old now and understands that he has weak muscles. He knows he can't run and that other kids are faster, can jump, and don't have a hard time standing up. If the disease progresses unchecked, walking will eventually it will be too hard. Eventually breathing someday will become hard, and maybe eventually too hard.

Currently there are no treatments, but that is not because the technology is unavailable. Quite simply, this is a rare disease and does not draw enough attention or funding to make a cure. We have identified the science and technology that can lead to an mRNA drug that will treat Wesley's disease, but we need your help.

Phase I to develop and test the mRNA therapy will cost $350,000. Phase II to take the drug through FDA approval will cost about $2 million.

So far we have raised over $260,000 toward Phase I, and we are so close! Please keep the Col6Fund in mind on Giving Tuesday and help us make a cure. I know we can do it with your help and support.